Remembering Dr. Crick’s contribution to painonline.
We cannot even find words to express our thanks to Representative Mike Rogers of Lansing Michigan, for sponsoring the National Pain Policy Act. HR 1863.
“A poor wayfaring man of grief hath often passed me on my way
Who sued so humbly for relief that I could never answer nay
I had not power to ask his name, where to he went, or whence he came”
We have hoped for so long for a pain initiative. Those brilliant minds at NIH and NIDH cannot do that research with no funding. Now, finally, Rep. Mike Rogers of Michigan has stepped forward to put his humanity where his politics are.
Yes, we do have to reinvent ourselves every day to survive, as Elizabeth Mitchell has so beautifully written …
A special thanks to the many who have contributed to Painonline.
Note: We do receive requests for information regarding donations for Central Pain Research, often in the interest of an affected relative. A number of institutions have received gifts from those interested in the goals of painonline. Any of those below would be worthy recipients of charitable contributions to research.
We recognize the following for their contributions, either through furnishing of data, authorship of landmark articles which have advanced research in the field, or correspondence which allowed greater insight into important topics.
Not all the benefactors of mankind are human. Here’s a tribute to one who especially deserves thanks. The Sprague-Dawley lab rat.
THE TINY, WONDERFUL RAT
Those with severe Central Pain will recognize the oxymoron in the lead title. “Survival” of the person who once was, is not possible in endless, terrible suffering. Yet, we address the difficult question: What is the best attitude in whatever identity remains, for survival of severe Central Pain? Similar principles probably apply to any type of longstanding torture, so we draw from that literature.
Do you hate philosophy? We do too, MOST of the time. But you are going to need one to confront Central Pain. So here is hoping the headache of weighing ideas will be less than the headache which appalling pain heaps upon you. Deep thought takes energy, but sound philosophy teaches you to conserve energy. Consider the following:
With pain, stress is inevitable. As Buytendijk says, whatever chronic pain teaches us comes at a usurious price. Depletion of resources is frequent. One must preserve energy sufficient to meet the pain. The problems encountered in handling pain are both those of a universal nature (pain hurts) and those which flow from individual personality characteristics.
A difficult topic. What attitudes are best for enduring Central Pain.
It is not always easy to address the problem of Central Pain. Since society is largely indifferent, the aware author should acknowledge what the CP sufferer is going through. At the same time, it is important to offer suggestions on how to get around the pain. Hopefully the reader will be able to sort out one approach from the other. However, this essay is for educational purposes only and does not constitute medical advice. One should always rely on one
Neuroscientists are reluctant to commit because they know next month’s journal may have something important. We thank this world famous scientist for bringing us up to speed. Many are afraid to commit because they know they may not want to be held to anything more than about six months old.
This article aims at guiding the general reader through the tangled web of information regarding research on pain (inflammatory, neuropathic, central, etc.) and animal models of pain. The reader will find keywords of major topics of focus in pain research illustrated and in bold characters.
Our own psychiatrists were tremendously helpful. This heightened our expectations, but then we began to hear from those not so fortunate so we are forced to ask, Where did these other hardhearted people get their training? Our beloved medical profession sometimes reeks when it comes to understanding CP.
We are the first to admit it may be inherent in the condition of CP itself. However, we do have to find somewhere to put that insulting, snotty, self-important neurologist who ran through his ordinary neurologic exam (omitting entirely the workup of nerve injury pain which requires special testing) and came up with nothing, and treated our condition like it was nothing, even as we wandered, or wheeled out into the street, five hundred dollars poorer, and wondered if we would have the strength to go on and face life another day. Where do we put this? Who will strengthen the weak knees if the doctor kicks them out from under us? This sounds like something out of Dickens, not part of modern medicine, but it happens every day to someone, somewhere, with Central Pain.
The question exists at some pain clinics. Are we to have a dialogue or a monologue? The routine neurologic examination is NOT a dialogue, as it carries NO CONTENT either way about Central Pain. We are not deluded zombies at the pain clinic. We are patients.
We do not consider an exam a CP exam until we see the von Frey hairs. If they aren’t there, it is an exam for something else, NOT Central Pain. The reason of course is Boivie’s paradox, “One must lose some sensation in order to become a candidate for severe pain.” This consistent finding, loss of sensation in the areas of burning requires vonFrey filaments, since the sensory loss is usually too slight to be measured by a sharp saftey pin.
If we feel nothing with the safety pin, they will only be testing the areas where WE DO NOT HAVE CP, so why bother? The “one size fits all” neurologic exam justifies a fee in the doctor’s mind, but it is completely beside the point in evaluation central pain.